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Mission statement:*Raising awareness about May 12th 2012 ~~ the 20th Anniversary of May 12th International Awareness Day for:
...
LYME/ME/FM/MCS/GWI//MS/CFS/Autism/Lupus, etc.*Awareness for funding, research, better treatment, and a CURE for all NEUROimmune & AUTOimmune Diseases/illnesses and/or disorders, Invisible Disabilities.
*To help "remove" the stigma attached to any of these illnesses...
*Education for all medical personnel, pharmacists, hospitals, the public, etc.
*Biomarkers for proper diagnosis, clinical trials, FDA/government approved medicine for these conditions, and more sensitive lyme tests, etc.
_________________________________________Please help to support May 12th "20th" Anniversary of International Awareness Day, in every way you can!
~Check out our NEW website:
http://may12.org/home.aspx
(more info will be added soon)Check for an event near you on the Spreadsheet: https://docs.google.com/spreadsheet/ccc?key=0AjjrJ4_wQeIOdDQta3JaaUhXNU9JQ0FxMDE0YUxuUWc#gid=0
Please contact Kassy Fatooh to add an event to the spreadsheet. Thanks!Some ways of promoting Awareness Day is to phone, e-mail, and/or fax to politicians, news media and public health officials.
_________________________________________~~~We should plan a coordinated RALLY/ ACTIONS in many locations ALL over the World and invite the news media!!!
***ACTIONS/RALLY/ Protests*** can be made at government health offices,
major cities, state capitols, provinces, regions,
or protest from bed if necessary,
and
even if the protest is only one person, record it and put it up on youtube and that way we make a two-day splash:
first day local and in person, second day global and on the internet.
Using visual aids like: our canes, walkers, wheelchairs, motor scooters,
beds, blankets, pillows, sunglasses,
icepacks, heating pads, sacks with our meds & supplements,
picket signs,
wearing our ribbons & tie ribbons to visible trees,
t-shirts, wristbands,
carry ketchup in ziplock baggies to simulate
BLOOD & ANYTHING else we can DO to
GET THE WORLD's ATTENTION for all neuro & auto immune diseases!!!
______________________________________________Many of these illnesses have overlapping symptoms:
LYME disease, GWI, M.E., lupus, CFS, MS, RSD, MCS, Autism, Sjogren's, ALS (Lou Gehrig's disease), Alzheimer's disease, Parkison's, fibromyalgia, P.O.T.S., Churg Strauss (CSS), Wegener's granulomatosis (WG), RA, Chiari I malformation, Ankylosing spondylitis,
and
any of the other diseases that are daily showing just how
interconnected are our brain,
hypothalmus, amygdala, endocrine system,
immune system, autonomic nervous system, genitourinary system, gut, liver, thyroid, and everything else!***In my family alone, there are many different diagnosis from the list I wrote above, and I'm putting this information out there for others to compare their family, themselves, and friends.
The following is borrowed from another page:
"The term neuro-immune disease (NID) refers to a group of illnesses that are the result of
acquired dysregulation of both the immune system
and
the nervous system,
often resulting in lifelong disease and disability.Symptoms may include:
mild to severe cognitive impairment;
disordered sleep; severe headache;
swollen lymph nodes; sore throat; malaise;
postural orthostatic tachycardia (POTS);
painful nerves, joints and or muscles;
abdominal pain; nausea;
and unusual fatigue.These diseases most often follow an infectious or flu-like illness that does not fully resolve after standard treatment or over a typical course of time.
Challenges to the immune system, such as new or reactivated infections, major life stresses or exposure to toxins,
can trigger
a severe relapse or worsening of existing symptoms.Recent published evidence associates human gamma retroviral infections with those who suffer from ME and CFS.
Neuro-immune diseases such as myalgic encephalomyelitis, chronic fatigue syndrome, are acquired disorders that impact the body and the brain. They are on the rise and can last a lifetime.
These diseases impact tens of millions of people around the world, yet those who suffer have no FDA-approved treatments for underlying causes of the diseases or methods to prevent others from becoming ill.
Neuro-immune diseases such as those listed below deserve significantly higher research priority to identify and develop biomarkers of disease and more effective treatments for those who suffer.
•1 in 300 suffers from ME and CFS
•1 in 150 suffers from fibromyalgia
•1 in 110 children has autism spectrum disorder
•Lyme disease is a fast growing epidemic in the U.S. (Many sufferers go on to develop a chronic illness identical to ME and CFS.)
•225,000 service men of the 600,000 from the 1991 gulf war have a multisymptom illness similar to ME and CFS called Gulf War illness (GWI)."
______________________________________________________Please see:
International Lyme Associated Disease Guidelines (ILADS)
http://www.ilads.org/about_ILADS/about_us.html
http://www.anapsid.org/lyme/symptoms/tbi-symptoms.html"Under Our Skin" movie FREE on the following hulu link:
http://www.hulu.com/watch/268761/under-our-skinMyalgic Encephalomyelitis: International Consensus Criteria (ICC)
http://niceguidelines.files.wordpress.com/2011/07/myalgic-encephalomyelitis-international-consensus-criteria.pdf
For a history of May 12th please read:
http://www.facebook.com/note.php?note_id=381277917239~~~~~We are in this FIGHT TOGETHER!~~~~~
All positive suggestions, ideas, and comments are welcome for this event!!!
Tuesday, 28 February 2012
May 12, 2012 ~~ 20th International Awareness Day Global Action! - Neuroimmune & Autoimmune Awareness In your area... state (major cities), province, region, government health offices, etc.
via facebook.com
